Sorry for the delayed response, very. busy work day.
Overall Brandon is doing well. It is a degenerative disease, so there is a steady decline but still the same he remains cheerful. If you ask him about it, he will say it is my lungs and just a breathing problem, I will be ok.
If you ask him about a recent eye ailment that he is finally recovering from, he will tell you it is ok, I have another one (eye).
And there isn't an ounce of cynicism with those answers, that is his honest point of veiw. When it is all said and done, I know will I have to celebrate his life more than grieving over his life. I will probably fail for a while, but that is what I gotta do to honour the way he has lived his life.
Brandon spends most of his time enjoying nature to the best of his abilities. During good weather he wants to be outside. He has a sun room so that even on cold days, he can still take in the veiw. Sometimes a pack of deers will come near the sun room, he loves taking it all in. He loves watching plants grow, and really has a strong perception of everything going on. He loves pretty girls. He knows who is arriving before anyone else by hearing them, as well as were everyone is in the house.
He has a 10 week old golden retriever that he is enjoying too.
We talked yesterday and he remembered last Easter being in the ICU. He doesn't talk much about those times, he just wanted to say he is stronger this year.
He is on my case to buy a new truck. It has to be victory red silverado. I had one when until he was six years old, and he is sentimental about that truck, it is Non negotiable, it has to be a red silverado 4x4 Z71 like the old one. Somebody ran a stop sign in 2001 and it was totaled. Brandon wasn't in that wreck.
I told Brandon that things were different now, I could no linger lift and put him the new truck for a ride. He has to have his custom wheel chair van now.
But he told me he knew that, he said "I just want you to have that truck for you, dad". So I am in the market.
I couldn't be any prouder of my boy, he is the best, the most selfless cheerful person I will ever know